Unlock a future for children with Sanfilippo.
With a pursuit to raise hope and find a cure for Sanfilippo through research, we believe every child deserves to grow. Help make that possible for those with Sanfilippo.
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Parents united to find a cure
Time is precious for the children diagnosed with this devastating condition. Help turn compassion into action, as we accelerate Sanfilippo Research with your donation.
About Us
For The Future of Children Diagnosed with Sanfilippo
Team Sanfilippo Foundation is not just an organization—we are a community of families, advocates, researchers, and supporters united by a shared purpose. Founded in 2008 by parents who know this journey firsthand, our non-profit organization is driven by urgency and hope. We invest in cutting-edge therapies, fund vital but often overlooked research, and help families access early treatment opportunities, clinical trials, and compassionate use programs.
Hope alone may not be enough, as it takes focused action, smart strategy, and relentless scientific progress to make a real difference. That’s what we are working toward every single day. We are committed to accelerating the development of impactful treatments. We are paving the way to attain an improved life and a better future for children with Sanfilippo Syndrome.
Learn about Sanfilippo Syndrome
What is Sanfilippo Syndrome?
Sanfilippo Syndrome is a rare and debilitating condition that replaces laughter with pain and development with decline. Not only does it affect children, but parents face the heartbreaking reality that the illness cruelly steals away their child's potential.
Children with this devastating disease experience severe dementia, and their lives are tragically cut short. Sanfilippo relentlessly takes it away, especially the chance to grow, learn, and experience life to the fullest. It robs families of the promise of tomorrow for their children.
But there’s still hope. Time is a gift for children with Sanfilippo and their families.
Team Sanfilippo Event 3
August 22, 2025 9:00 am - 2:00 pm
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Team Sanfilippo Event 2
July 18, 2025 8:00 am - 11:00 pm
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Team Sanfiippo Event 1
June 24, 2025 10:00 am - 4:00 pm
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